I can’t sleep because I’m scared my son might die.
It’s funny; saying it that way. “A child with Autism.” As if it were something she elected to carry around with her.
You see, a 4 year old doesn’t understand that without insulin, you die. A 4 year old doesn’t understand words like “incurable” or “chronic”—but they do understand that needles hurt and finger pokes sting.
I hope that when you read some of these stories from the lives of people and families living with Type 1, they will help you understand our battle better.
For a parent of a preemie or a child with disabilities, it means the world.
This is what I know: there are so many heart-rending and devastating things about having a sick child.
Change takes time to feel like a new normal. I always feel like I just got here though. No matter what “here” I'm talking about.
I would wish it on no one - and yet, I chose to have babies, knowing that they could inherit the curse that plagued my brother.
“Wow! She’s a daddy’s girl, isn’t she?” We got this comment from the moment she was born, and they stung like little paper cuts each time.
I know that this is not your problem, but he is my whole world and I can’t express how grateful I am to you for your help in keeping him safe.