It could have turned out differently I suppose, if I’d allowed myself a companion as I ran the rare disease gauntlet with my son.
When Autism Lives Across The Street
We are so grateful for anyone who steps into our lives and wants to help make his sphere a little friendlier, a little more appreciative of all he has to offer.
The Best Endings Aren’t
One thing I’ve come to realize is what makes a “happy ending” (in real life) is that it’s really just a beginning.
Dear Surgeon
So when I hand over my son's tiny frail dying body, know that I trust you.
You Are Not Alone: Parenting A Child With Down Syndrome
Parenting a child with a disability like Down syndrome requires courage, patience and love in what can sometimes seem an impossible battle. But it is a battle that can be made considerably easier to fight if you remember that you are not alone.
The Emotional Costs Of Being A New Special Needs Mom
The other hard part? Thinking it’s all “normal” and that we must be bad parents for not being able to get it under control.
The Sandwich That Changed Everything
As parents, one of the more primal responsibilities we have is to feed our children. To be seen as deficient in that arena is to call into question our basic success in caring for them.
Dear God – Musings on the New Year from the Mother of a Sick Child
I wish I could tell you I was optimistic about the New Year, but given the overall shitty nature of this past year, I’ll try and keep my hopes grounded in reality.
I See You
Today, his teacher unknowingly answered my supplication in the form of a manila folder. A folder that said, “I see you. And you are loved.”
See Them
Katie launched a campaign called “Changing the Face of Beauty, ” to transform public perception of people with disabilities by including them in advertising and media.