I would wish it on no one – and yet, I chose to have babies, knowing that they could inherit the curse that plagued my brother.

“Wow! She’s a daddy’s girl, isn’t she?” We got this comment from the moment she was born, and they stung like little paper cuts each time.

I know that this is not your problem, but he is my whole world and I can’t express how grateful I am to you for your help in keeping him safe.

I'm willing to try almost anything to help him. And today, we tried eating poison.

1. OT’s understand the parents and do not think we are crazy.

The term ‘highly sensitive’ meant nothing to me six years ago, back when I was the bewildered mother of a three-year-old boy who seemed unable to tolerate the world around him.

It could have turned out differently I suppose, if I’d allowed myself a companion as I ran the rare disease gauntlet with my son.

We are so grateful for anyone who steps into our lives and wants to help make his sphere a little friendlier, a little more appreciative of all he has to offer.

One thing I’ve come to realize is what makes a “happy ending” (in real life) is that it’s really just a beginning.

So when I hand over my son's tiny frail dying body, know that I trust you.