Parenting a child with a disability like Down syndrome requires courage, patience and love in what can sometimes seem an impossible battle. But it is a battle that can be made considerably easier to fight if you remember that you are not alone.

The other hard part? Thinking it’s all “normal” and that we must be bad parents for not being able to get it under control.

As parents, one of the more primal responsibilities we have is to feed our children. To be seen as deficient in that arena is to call into question our basic success in caring for them.

I wish I could tell you I was optimistic about the New Year, but given the overall shitty nature of this past year, I’ll try and keep my hopes grounded in reality.

Today, his teacher unknowingly answered my supplication in the form of a manila folder. A folder that said, “I see you. And you are loved.”

Katie launched a campaign called “Changing the Face of Beauty, ” to transform public perception of people with disabilities by including them in advertising and media.

Living in a society where bullying has become such a prevalent issue, it is beautiful to see that these young children do not see anything as being “wrong” with a person. 

An interview with the mother of Madeline Stuart, the 18-year-old model with Down Syndrome who walked in NY Fashion Week.

She stutters so badly, and she starts preschool next month. Can you fix it? Can you make them be patient, help them understand her? Can you promise they will be kind?

I found life down there at the bottom of that vast sea, a group of like-minded parents who knew exactly what I was feeling, parents who knew exactly what I was experiencing.