For a parent of a preemie or a child with disabilities, it means the world.

This is what I know: there are so many heart-rending and devastating things about having a sick child.

I would wish it on no one – and yet, I chose to have babies, knowing that they could inherit the curse that plagued my brother.

“Wow! She’s a daddy’s girl, isn’t she?” We got this comment from the moment she was born, and they stung like little paper cuts each time.

I know that this is not your problem, but he is my whole world and I can’t express how grateful I am to you for your help in keeping him safe.